On February 24, UBC Health convened more than 50 researchers and other colleagues from the Vancouver and Okanagan campuses as well as community members for a focused discussion about the collection and use of disaggregated data. 

This session was Part II in the UBC Health Disaggregated Data Dialogue Series, continuing and focusing the conversations started during the first webinar where participants heard from BC’s Human Rights Commissioner about the Disaggregated demographic data collection in British Columbia: The grandmother perspective report.

This series embodies UBC Health’s commitment to being part of the ongoing conversation about disaggregated data. We want to use data to address stigma, discrimination, and suffering.

Participants generously shared their ideas about the responsibilities that researchers, educators, and UBC as an institution have in relation to disaggregated data. 

Future events in this series will be informed by the dialogue to date and focus on topics such as: understanding the purpose of disaggregated data collection; safe collection of data; considerations for data use and interpretation; meaningful and respectful engagement; and training to support researchers, students, and people working in the community. 

“This series embodies UBC Health’s commitment to being part of the ongoing conversation about disaggregated data. We want to use data to address stigma, discrimination, and suffering,” says Kim McGrail, Director of Research at UBC Health. “We also embrace the need to enable disaggregated data use in partnership with the communities those data represent. Our ongoing conversations will be about how to achieve the meaningful collaborations that are required.”

Posted March 11, 2021